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0:57
Der kleine Milo kommt mit einem seltenen Gendefekt auf die Welt. Er hat das Angelman-Syndrom. Die physische und psychische Behinderung schränkt ihn und seine Familie in vielen Dingen ein. Zwei Jahre lang wird die Familie begleitet: Wie kommen sie zurecht mit einer Krankheit, die ihren Alltag verändert? Den ganzen Film „Ein Gen verändert unser Leben“ gibt es hier: https://kurz.zdf.de/mbYY/ | 37 Grad
509.7K views
May 18, 2023
Facebook
37 Grad
1:45
Als Milo auf die Welt kommt, scheint das Glück von Nicole und Michael perfekt. Doch dann entwickelt sich Milo nicht wie andere Kinder. Die Diagnose: Er hat das Angelman-Syndrom – eine physische und psychische Behinderung. Zwei Jahre lang wird die Familie begleitet: Wie kommen sie zurecht mit einer Krankheit, die ihren Alltag verändert? Den ganzen Film „Ein Gen verändert unser Leben“ gibt es hier: https://kurz.zdf.de/mbYY/ | 37 Grad
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Facebook
37 Grad
1:14
Die kleine Mara hat das sogenannte Angelman-Syndrom – eine neurogenetische Krankheit. Eine Delfintherapie könnte ihr helfen. Die ist aber extrem teuer. Eine ganze Gemeinde zeigt Herz. 🐬 ❤️ | Landesschau Baden-Württemberg
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💙 Manche Geschichten sind leise und verdienen trotzdem Gehör. 🩵 Heute setzen wir ein blaues Zeichen für Kinder und Erwachsene mit dem Angelman- Syndrom. Das Angelman- Syndrom ist eine seltene genetische Erkrankung, die die Entwicklung, Kommunikation und Motorik der Betroffenen stark beeinträchtigt. Sie geht mit schweren geistigen und körperlichen Einschränkungen einher, häufig ist sie sogar mit Epilepsie und Schlafstörungen verbunden. Und der Unterstützungsbedarf für diese kleinen Angel sind s
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The strength of the Angelman community is life-changing for individuals with Angelman syndrome. Every day, we lean on others for practical help, expert care, advancing science, and a network that never lets go. Your donation makes an immediate difference. It helps Angelman families access help they need today while building a stronger tomorrow for all of us living with Angelman syndrome. 💪 Donate 👉 support.angelman.org/strength #StrengthInCommunity #angelmansyndromefoundation #angelmansyndrome
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